A Patient’s Perspective on Living with WM
Peter DeNardis, IWMF Trustee & WM Warrior, 2019 Ed Forum
Provides everything you wanted to ask about living with WM upon diagnosis but were too numb to ask!
The I-Patient - Virtual Networking with Other WMers & the WhiMSICAL Database
Peter DeNardis – IWMF (assisted by Andrew Warden – Wmozzies , Australian affiliate of IWMF), 2018 Ed Forum
Presents information about IWMF Connect, Facebook, IWMF e-News, advocacy, and surveys for data bases (like WhiMSICAL)
No video available
Member Resources: IWMF Connect and Website Highlights
Peter DeNardis – IWMF Trustee, 2018 Ed Forum
Provides sources of information from IWMF for patients with WM and their families, including the IWMF website, the IWMF Facebook page, the closed WM Facebook support page, IWMF Connect, e-News for those who join IWMF, emails, support groups, international affiliates, Lifeline (one on one support by subject matter), publications written specifically for patients with WM and their families, Physicians Directory (medical experts in WM from around the world), research information on WM, Stories of Hope, fundraising for the IWMF, crowdfunding, financial assistance resources
No video available
IWMF Connect, Social Media & the I-Patient – Virtual Networking with Other WM’ers
Peter DeNardis, IWMF Trustee, 2017 Ed Forum
No video available
The Patient Perspective on Being Newly Diagnosed
Peter DeNardis – IWMF Trustee, 2017 Ed Forum
Provides the patient’s perspective about living with cancer upon diagnosis of WM
Benefits of being an “Empowered Patient” and the IWMF
Peter, a patient and IWMF Trustee, discusses the benefits to patients and caregivers of IWMF-TALK (an online discussion forum, now known as IWMF Connect) and the importance of being "empowered" patients.
No slides available
Newly Diagnosed
Peter, a patient and IWMF Trustee, discusses the benefits to patients and caregivers of IWMF-TALK (an online discussion forum, now known as IWMF Connect) and the importance of being "empowered" patients.
No video available
Introduction to IWMF
The IWMF is here to help you! Peter DeNardis, Board Member of the IWMF talks about what it is like to be diagnosed with Waldenstrom’s macroglobulinemia and how the Foundation helps everyone affected by the disease through its efforts to promote awareness, provide education and support, and fund research directed to finding better treatments and a cure for WM.
No slides available
Member Resources: IWMF Connect and Website Highlights
Provides sources of information from IWMF for patients with WM and their families, including the IWMF website, the IWMF Facebook page, the closed WM Facebook support page, IWMF Connect, e-News for those who join IWMF, emails, support groups, international affiliates, Lifeline (one on one support by subject matter), publications written specifically for patients with WM and their families, Physicians Directory (medical experts in WM from around the world), research information on WM, Stories of Hope, fundraising for the IWMF, crowdfunding, financial assistance resources
No video available