International Waldenstrom’s Macroglobulinemia Foundation

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From Canada – A Story of Hope: Michael Knowlton

From Michael Knowlton: Kindness is a beautiful thing, both as the recipient, and as the giver. Living with cancer (WM) in my life has reminded me of the importance of being a force for good and working every day to make a difference for others. This video is part of a...

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Virtual COVID-19 Rare Disease Discussion Groups

All are welcome at the Virtual COVID-19 Rare Disease Discussion Groups(link is external) coordinated by the National Organization for Rare Disorders (NORD). The goal of these discussion groups is to connect as a community to exchange stories and experiences with...

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Presenting 2020 Updated IWMF Publications

An updated IWMF Medical Tests booklet, and newly translated Venetoclax and Zanubrutinib Fact Sheets are now available – each explaining the basics of WM testing and current treatments. In the past few years there has been an explosion of research and discoveries in...

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The Results Are In!

Thank you for making the 2020 Giving Challenge a success for the IWMF! The results are in: 630 donors helped raise over $132,000 in just 24-hours! We knew we could count on you to help us make this year's Giving Challenge a success. The 2020 Giving Challenge was...

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The 24-Hour 2020 Giving Challenge Starts Tomorrow!

The Giving Challenge only happens every other year. On top of the incredible gift match opportunities outlined below, organizations participating in this year's Giving Challenge receive a special cash prize for the fastest number of donations made. Help make this...

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Cancer Support Community’s New Cancer Emergency Fund

The Cancer Support Community (CSC) has launched a new emergency fund. This fund will provide a $250 relief grant for people with cancer who are in active treatment, including palliative and hospice care. The assistance is for non-medical expenses during the...

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WM, Coronavirus, and the IWMF – April 20 Update

The worldwide coronavirus outbreak, declared a pandemic by the World Health Organization (WHO) on Wednesday, March 11, continues to be of great concern to WM patients and caregivers around the world. ·     A message from Dr. Steve Treon of DFCI (Dana Farber Cancer...

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WM, Coronavirus, and the IWMF – April 13 Update

The worldwide coronavirus outbreak, declared a pandemic by the World Health Organization (WHO) on Wednesday, March 11, continues to be of great concern to WM patients and caregivers around the world. Lisa Wise, member of the IWMF Board of Trustees and Vice-Chair of...

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PAN COVID-19 Treatment and Prevention Fund

PAN (Patient Advocacy Network) has announced a new patient financial aid program that will provide $300 on a pre-paid debit card for individuals who are Medicare recipients with cancer and have been diagnosed with COVID-19 or directed to self-quarantine due to...

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WM, Coronavirus, and the IWMF – April 6 Update

The worldwide coronavirus outbreak, declared a pandemic by the World Health Organization (WHO) on Wednesday, March 11, continues to be of great concern to WM patients and caregivers around the world. Dr. Castillo with the Dana Farber Cancer Institute and a member of...

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LLS COVID-19 Patient Financial Aid Program

The Leukemia & Lymphoma Society (LLS) has announced a new patient financial aid program that will provide $250 to eligible blood cancer patients experiencing financial hardship due to the pandemic. This program will help these patients offset non-medical expenses...

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WM, Coronavirus, and the IWMF – March 30 Update

In these uncertain times, there is one thing that we know for sure:  With the IWMF, we are never alone.  That unifying truth is even more important and powerful during these trying days of social distancing and isolation in the face of COVID-19. Since your safety and...

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Peter Haarmann: Treatment, Healing and Faith

In the summer of 2014, I became slightly short of breath during a hike up a granite dome mountain called “The Thumb” at Sequoia National Park. This was highly unusual for me. I have been a high-energy person my entire life, working in the construction industry for 40...

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IWMF Cancels 2020 IWMF Educational Forum

Due to the coronavirus global health pandemic we are all facing now, and out of concern for the health and safety of the worldwide community of WM patients, families, caregivers, and medical professionals, the IWMF has cancelled the 2020 Education Forum that was...

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WM, Coronavirus, and the IWMF – March 23 Update

The worldwide coronavirus outbreak, declared a pandemic by the World Health Organization (WHO) on Wednesday, March 11, continues to be of great concern to WM patients and caregivers around the world. As extra precautions are being taken around the world to protect...

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WM, Coronavirus, and the IWMF – March 16 Update

The worldwide coronavirus outbreak, declared a pandemic by the World Health Organization (WHO) on Wednesday, March 11, continues to be of great concern to WM patients and caregivers around the world. We again encourage all patients, caregivers and families impacted by...

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WM, Coronavirus, and the IWMF – March 9 Update

The worldwide coronavirus outbreak is naturally of great concern to WM patients and caregivers around the world.  Its impact on our daily lives cannot be discounted or ignored. We encourage all patients, caregivers and families impacted by WM to remain vigilant, and...

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IWMF Board Elects President & CEO

At the February IWMF Board of Trustees meeting, Newton Guerin was appointed to the position of full-time Chief Executive Officer and President of the IWMF. While Newton replaces Rick Smith, who resigned in November for personal reasons, he is not new to the IWMF, as...

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The IWMF Adds Its Second Affiliate in South America

The IWMF’s newest Affiliate, Waldenstrom Chile, will provide education and support to WM patients and caregivers across Chile.  Leadership for Waldenstrom Chile will be provided by Jeannette Quiroz. Jeannette is a WM patient who shared her “Story of Hope" in September...

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WM and Coronavirus

By now, most of the worldwide community of WM patients and caregivers is well aware of the coronavirus (COVID-19) outbreak that originated in China and is spreading to other countries around the globe. Since many affected by WM are immunocompromised, there is obvious...

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IWMF Welcomes Its First Affiliate in Africa

Working with Campaigning for Cancer, an advocacy organization that was formed in 2008 to give South African patients and those affected by cancer a voice, the South African Waldenstrom Patient Group has been established to advocate for WM patients in South Africa and...

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NEW Free IWMF-CancerCare Online/Phone Workshop on WM

On Thursday, March 19 from 1:30 - 2:30PM Eastern Time, Dr. Steven Treon of the Dana-Farber Cancer Institute and Dr. Christian Buske of University of Ulm, Germany will present a workshop focused on "The Latest News in the Treatment of WM". You can participate in this...

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IWMF Welcomes Its 19th International Affiliate

The newest IWMF Affiliate, Flute of Light/WM, under the leadership of Giora Sharf, is based in Israel and is supporting most types of blood cancer patients. The WM representative within Flute of Light/WM will be Averil Shulman. Originally from South Africa, Averil has...

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Dr. Treon to Speak at LLS Blood Cancer Conference in Florida

The LLS Blood Cancer Conference in Fort Lauderdale, Florida, will take place on Saturday, February 29, 2020, and Dr. Steven Treon of Dana-Farber Cancer Institute will be presenting on the topic of Waldenstrom’s macroglobulinemia (WM). While the conference is free for...

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2020 Ed Forum Registration is Open!

Register online now and learn all the details at www.iwmf.com/news-and-events/iwmf-educational-forum OR complete the form provided with the printed January issue of the IWMF Torch coming soon.

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Steven Treon, MD, PhD to Serve as Advisor to IWMF Board

Dr. Steven Treon, MD, PhD, (Dana-Farber Cancer Institute) has agreed to advise the IWMF Board of Trustees. Dr. Treon joins Dr. Ansell of the Mayo Clinic in providing the critical perspective of world-renowned clinicians/researchers to the IWMF Board. Dr. Treon and Dr....

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IWMF Commits to a Strategic Plan: Vision of a World Without WM

Vision without Action is merely a dream. Action without Vision is just passing the time. Vision with Action will change the world.                                                                                                                                      Joel...

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From Chile: Jeannette Quiroz’s Waldenstrom’s Pregnancy

Yes, such a pregnancy is possible, and here I am, pictured with my son who is almost five years old and who is the joy of my life.  It all started in January of 2013, when I was 35 years old. I went to see an endocrinologist because I suspected I might have diabetes....

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Patient Airlift Services

Patient AirLift Services (PALS) is a non-profit organization that helps those who cannot afford, or who are unable, to fly commercially. PALS volunteer pilots donate their time and aircraft with the goal of alleviating transportation issues that create a financial...

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Michael van Ewijk: 5 Years on Ibrutinib and Still Going Strong

From Australia: Life’s Good for Michael van Ewijk Thanks to Ibrutinib Michael’s story was first published on www.iwmf.com  on December 3, 2015. This update to the story is a reprint from the Leukaemia Foundation of Australia’s June 2019 issue of Lymphoma News. Michael...

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