IWMF 2021 Virtual Educational Forum Agenda – October 28th & 29th, 2021

2021 ED FORUM LOGO

26th Annual IWMF Educational Forum

IMAGINE A CURE: A WORLD WITHOUT WM

The 2021 Ed Forum will be a completely virtual event. We are excited to announce an entire month of educational workshops in October 2021, culminating in our Virtual Educational Forum. These workshops are for all members of the WM community – from newly diagnosed patients, to 25+ year WM veterans, and everyone in-between. These workshops, led by top WM physicians and researchers, will help lay the educational groundwork for a two-day Virtual Educational Forum. Check back for agenda and other program updates.

IWMF Ed Forum Workshops and Ed Forum Days

2021 VIRTUAL EDUCATIONAL FORUM – DAY 1

28

October

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11:00 AM - 11:10 AM ET

11:10 AM – 11:20 AM ET

Welcome
Welcome
Welcome

Welcome from Peter DeNardis, IWMF Chair

Ben Rude Heritage Society

  • Laurie Rude-Betts
  • Newton Guerin, IWMF President & CEO
  • Jeremy Dictor

Judith May Volunteer Award- Peter DeNardis, IWMF Board Chair and Michael Farbman

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11:20 AM ET

Welcome

Welcome and Introduction – Peter DeNardis, IWMF Board Chair

11:20 AM – 12:00 PM ET

12:00 PM – 12:20 PM ET

Q&A

Current Treatment Options - Stephen Ansell, MD

A concise and informative review of current treatments along with the pros and cons of each.

12:20 PM – 1:00 PM ET

BREAK

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1:00 PM ET

Welcome

Welcome and Introduction – Sharon Rivet, Ed Forum Planning Committee Member

1:00 PM -1:40 PM ET

1:40 PM – 2:00 PM ET

Q&A

Novel Treatments on the Horizon and the Importance of Clinical Trials for Drug Development - Jorge Castillo, MD

The latest information available about potential new treatments for WM, as well as the necessity for patient participation in clinical trials to help move the pipeline along for more novel therapies.

2:00 PM – 2:30 PM ET

BREAK

Mini general sessions: 30-minute basics overview on each topic immediately followed by Q&A

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2:30 PM - 2:35 ET

Welcome

Welcome and Introduction – Overview of Mini-General Sessions – Bob Perry, WMUK

2:35 PM – 3:15 PM ET

WM & Peripheral Neuropathy (with 10 minute Q&A) - Shirley D’Sa, MD

Learn about different coping strategies and treatment options for those living with the pain and challenges of peripheral neuropathy. This session will address the differences between WM-caused PN versus treatment-caused PN.

3:15 PM – 3:55 PM ET

WM & Dermatology (with 10 minute Q&A) - Kate Mimken, NP

An overview of the variety of dermatologic conditions that sometimes affect WM patients. Learn how to differentiate those problems that are a result of the disease itself and those which are often associated with treatments.

3:55 PM – 3:25 PM ET

WM & Fatigue - Larisa Patacchiola, LICSW

An overview of cancer related fatigue presented in a way that is meaningful to WM patients. A discussion about how cancer-related fatigue and its impact on quality of life, contributing factors that can add to fatigue, and the ways in which fatigue can be managed.

2021 VIRTUAL EDUCATIONAL FORUM – DAY 2

29

October

9:00 AM ET

11:00 AM – 11:05 AM ET

Welcome
Welcome
Welcome

Walk for Waldenstrom’s

Welcome and Announcements – Newton Guerin, IWMF President and CEO

Dr. Robert A Kyle Career Development Award –

Introduction – Carl Harrington, IWMF Chair Emeritus

Award Presentation- Dr. Tom Hoffmann, IWMF Trustee

Recipients:
Dr. Maria Luisa Guerrera
Dr. Romanos Sklavenitis-Pistofidis

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11:20 AM ET

Welcome

Welcome and Introduction – Carl Lisman, IWMF Trustee

11:20 AM – 12:00 PM ET

12:00 PM – 12:20 PM ET

Q&A

Familial WM - Mary Lou McMaster, MD

Many people with WM have other relatives with WM, MGUS, or related blood cancers. The question of whether WM is “inherited” is a complicated one. Dr. Mary Lou McMaster (from the National Institutes of Health) will share her many years of research on the nature of familial factors in WM. She will clarify what is meant by “familial” as opposed to “genetic predisposition.” She will also discuss the role that environmental factors can play.

12:20 PM – 12:45 PM ET

BREAK

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12:45 PM ET

Welcome

Welcome and Introduction – Paul Kitchen, IWMF Board Trustee and Chair, International Affiliates

12:45 PM – 1:45 PM ET

A Review of NCCN Guidelines for WM -

Steve Treon, MD – Bing Center for Waldenstrom’s Macroglobulinemia

Dr. Treon will review the NCCN guidelines. NCCN is a not-for-profit alliance of 31 leading cancer centers devoted to patient care, research, and education. The NCCN is dedicated to improving and facilitating quality, effective, efficient, and accessible cancer care so patients can live better lives.

1:45 PM – 2:15 PM ET

BREAK

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2:15 PM ET

Welcome

Welcome and Introduction – Newton Guerin, IWMF President and CEO

2:15 PM – 3:45 PM ET

Ask the Doctors: Live Panel with Q&A - Dr. Steven Treon moderating , Panelists: Drs. Ansell, Branagan, McMaster, Castillo, Buske

A panel of WM experts will answer, and sometimes debate, questions about WM from the Ed Forum audience.

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3:45 PM ET

Welcome

Welcome and Introduction – Steven Treon, MD

3:45 PM – 4:10 PM ET

Advancements Through IWMF-LLS Funded Research - Gwen Nichols, MD

Dr. Gwen Nichols, Chief Medical Officer for the Leukemia and Lymphoma Society, reviews the importance of WM research and progress through IWMF-LLS funded projects.

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4:10 PM ET

IWMF Ed Forum Closing

Closing Announcements & Preview of Ed Forum 2022 – Newton Guerin, IWMF President & CEO

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