The IWMF presents this recording of the first-ever global support group meeting for patients, caregivers and others interested in Bing-Neel Syndrome, a rare complication in a rare cancer. Dr. Steven Treon and Dr. Jorge Castillo from the Bing Center for WM at Dana Farber Cancer Institute discussed the history of and treatment options for this syndrome, and held a Q&A session following the presentations. In addition, participants met in break-out rooms (which were not recorded) with others from 11 countries and many US states.
A special thank you to Eileen Sullivan, Support Group Leader of the Eastern Massachusetts (US) Support Group, for hosting this meeting on behalf of the IWMF.