In the mid 1980’s, I began having symptoms that are common to most of us with WM. I saw doctors for seven years before a diagnosis of WM finally was...
International Waldenstrom’s Macroglobulinemia Foundation
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The 2022 Educational Forum Primer Series
View rebroadcasts from the October 6th 2021 Ed Forum WM Basics Workshop and NEW Q&A with our presenters! Please note that you will need to register to view the live and on demand webcasts.
WM & Basic Terminology
The first in our 2022 Educational Forum Primer Series will benefit newly diagnosed patients and veteran WMers will enjoy a refresher course on Waldenstrom macroglobulinemia with an explanation of diagnosis, symptoms, and some simple treatment guidelines. Featuring Dr. Jeffrey Matous, Medical Director from the Colorado Blood Cancer Institute.
Genomics/Science of WM
Get a basic understanding of the science of WM and sets out a framework of basic genetic concepts behind the mutations that are important in WM. Dr. Sikander Ailawadhi, Mayo Jacksonville, discusses the ways in which these mutations impact the signaling systems that control the behavior of WM cells, and to recognize how these mutations are changing the landscape of therapies for WM.
Understanding Your Blood and Bone Marrow Tests
The third in our Ed Forum Primer Series, Dr. Rafat Abonour will describe the blood and bone marrow tests used to help diagnose WM, as well as explain and interpret the typical tests used by healthcare providers to monitor the disease status of their WM patients. After the broadcast Dr. Abonour will answer questions from the chat box LIVE! July 13, 2022, 1:30PM EDT
HOW CAN THE IWMF HELP?
Newly Diagnosed?
Getting a diagnosis of WM can feel overwhelming. You have questions, we have answers! Tap in to our comprehensive resources about this rare disease.
Get Support
We are here to support you throughout your journey living with Waldenstrom macroglobulinemia. Remember, with the IWMF, you are never alone.
Join Us
When you join the IWMF, you become a member of an international community of people affected by Waldenstrom macroglobulinemia.
IWMF Calendar of Events
Indiana Support Group Meeting
Indiana Support Group Meeting
Date: July 16, 2022Time: @ 10:00 am- @ 12:00 pm
IWMF Virtual Ed Forum 2022 Starts In:
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International Waldenstrom’s Macroglobulinemia Foundation News
Davell Hays: My Very Long Journey with WM and the IWMF
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View Presentations & Videos from the IWMF 2016 Educational Forum
Select videos from the 2016 IWMF Educational Forum (held in Providence, Rhode Island, on June 10-12, 2016) are now available. You can also find links to...
Ali Handal – Singer Faces WM By “Letting Go” and Settling for More
Ali Handal, a professional singer-songwriter, guitarist, and author, whose songs have been featured in numerous films and hit shows like Sex and the...
Stories of Hope
People with Waldenstrom macroglobulinemia and their caregivers share how they have coped living with this rare disease. Learn from these inspirational stories.
ABBREVIATED COVID-19 Letter to Share with Hospitals for Emergency Medical Events
The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is offering its official statement for hospitals regarding prioritizing Waldenstrom’s macroglobulinemia patients when triaging care during the COVID-19 Pandemic. We recommend that all WM patients have this letter handy and available
when visiting an ER in the event that they may have COVID-19.
Stay Safe – Stay Healthy – Stay Waldenstrong!
How Can We Help You?
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REGISTER NOW! Understanding Your Blood & Bone Marrow Test Results with Dr. Rafat Abonour . Wednesday, July 13th at 1:30 PM EDT.
Register HERE: http://tinyurl.com/iwmfevents-2022-5a
REGISTRATION IS NOW OPEN! Register now for the 2022 IWMF Virtual Educational Forum, August 27th & 28th. Join us for a unique opportunity to learn & connect with one another!
REGISTER: https://tinyurl.com/iwmfevents-ed-forum-SM
REGISTER NOW for TODAY'S WEBCAST Genomics/Science of WM with Dr. Sikander Ailawadhi: https://tinyurl.com/iwmfevents-2022-4
