I decided to publicize my experience as a person suffering from Waldenström’s macroglobulinemia (WM) because, regardless of the importance of sharing...
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The 2022 Educational Forum Primer Series
View rebroadcasts from the October 6th 2021 Ed Forum WM Basics Workshop and NEW Q&A with our presenters! Please note that you will need to register to view the live and on demand webcasts.
WM & Basic Terminology
The first in our 2022 Educational Forum Primer Series will benefit newly diagnosed patients and veteran WMers will enjoy a refresher course on Waldenstrom macroglobulinemia with an explanation of diagnosis, symptoms, and some simple treatment guidelines. Featuring Dr. Jeffrey Matous, Medical Director from the Colorado Blood Cancer Institute.
Genomics/Science of WM
Get a basic understanding of the science of WM and sets out a framework of basic genetic concepts behind the mutations that are important in WM. Dr. Sikander Ailawadhi, Mayo Jacksonville, discusses the ways in which these mutations impact the signaling systems that control the behavior of WM cells, and to recognize how these mutations are changing the landscape of therapies for WM.
Understanding Your Blood and Bone Marrow Tests
The third in our Ed Forum Primer Series, Dr. Rafat Abonour will describe the blood and bone marrow tests used to help diagnose WM, as well as explain and interpret the typical tests used by healthcare providers to monitor the disease status of their WM patients. After the broadcast Dr. Abonour will answer questions from the chat box LIVE! July 13, 2022, 1:30PM EDT
HOW CAN THE IWMF HELP?
Newly Diagnosed?
Getting a diagnosis of WM can feel overwhelming. You have questions, we have answers! Tap in to our comprehensive resources about this rare disease.
Get Support
We are here to support you throughout your journey living with Waldenstrom macroglobulinemia. Remember, with the IWMF, you are never alone.
Join Us
When you join the IWMF, you become a member of an international community of people affected by Waldenstrom macroglobulinemia.
IWMF Calendar of Events
Indiana Support Group Meeting
Indiana Support Group Meeting
Date: July 16, 2022Time: @ 10:00 am- @ 12:00 pm
Triage Cancer – Decisions About Work
Triage Cancer – Decisions About Work
Date: July 20, 2022Time: @ 1:00 pm- @ 2:30 pm
IWMF Virtual Ed Forum 2022 Starts In:
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International Waldenstrom’s Macroglobulinemia Foundation News
From Italy – Daniela Calamai: Waldenstrom’s Macroglobulinemia: A Family History
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The IWWM9 Doctor-Patient Forum Was Truly an International Event
The Forum was sponsored by the IWMF and Hematon (the Dutch blood cancer organization) and followed the 9th International Workshop on WM (IWWM9). The attendees...
Update on Ibrutinib – Approval for Use in England and Australia
Thanks to researchers and to clinical trial participant patients around the world, and as a result of research funded by the IWMF and its International...
Stories of Hope
People with Waldenstrom macroglobulinemia and their caregivers share how they have coped living with this rare disease. Learn from these inspirational stories.
ABBREVIATED COVID-19 Letter to Share with Hospitals for Emergency Medical Events
The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is offering its official statement for hospitals regarding prioritizing Waldenstrom’s macroglobulinemia patients when triaging care during the COVID-19 Pandemic. We recommend that all WM patients have this letter handy and available
when visiting an ER in the event that they may have COVID-19.
Stay Safe – Stay Healthy – Stay Waldenstrong!
How Can We Help You?
Our Website Sponsors
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REGISTER NOW! Understanding Your Blood & Bone Marrow Test Results with Dr. Rafat Abonour . Wednesday, July 13th at 1:30 PM EDT.
Register HERE: http://tinyurl.com/iwmfevents-2022-5a
REGISTRATION IS NOW OPEN! Register now for the 2022 IWMF Virtual Educational Forum, August 27th & 28th. Join us for a unique opportunity to learn & connect with one another!
REGISTER: https://tinyurl.com/iwmfevents-ed-forum-SM
REGISTER NOW for TODAY'S WEBCAST Genomics/Science of WM with Dr. Sikander Ailawadhi: https://tinyurl.com/iwmfevents-2022-4
