News

Health Canada Approves Ibrutinib for WM Patients

The IWMF and the WM Foundation of Canada have confirmed that, as of March 31, 2016, Health Canada has updated their “Notice of Compliance with Conditions (NOC/c) for Imbruvica (ibrutinib)” to include treatment for WM patients. This means that it is now available for...

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IWMF Re-Organized Offices

Sara McKinnie is taking on a new position as Partnership and Meeting Coordinator. In this role, Sara will focus on expanding and enhancing IWMF’s relationships with other lymphoma cancer partners, managing the annual IWMF Educational Forum, managing the production of...

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IWMF Adds New Member to Board of Trustees

Many of you know Wanda from her frequent insightful posts on the IWMF-Talk email discussion forum. Wanda is a registered nurse who specializes in behavioral health and psychiatric care. She will chair the IWMF Clinical Trial and Lifeline Committees. You’ll be able to...

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Plan Now to Attend the 2016 IWMF Ed Forum

The 21st IWMF Ed Forum will be held in Providence, RI, on June 10-12, at the Omni Providence Hotel downtown, so make your plans now to attend. The theme this year is Imagine a Cure: Pathways to Progress to highlight the exciting Strategic Research Roadmap Initiative...

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New Presentations from Dr. Steven Treon

Dr. Steven Treon from Dana-Farber Cancer Institute recently gave two presentations at the Lymphoma Research Foundation (LRF) Educational Forum that are now available online. The two presentations are: “Waldenstrom’s Macroglobulinemia-Part A” (Biology of Waldenstrom’s...

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Strategic Research Roadmap Proceeds To Next Step

The RFP was developed jointly by the IWMF and the Leukemia & Lymphoma Society (LLS) and sent in mid-November to over 200 researchers. It is the direct result of a conference held in May 2015 in New York City that identified four research priority areas focused on...

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IWMF Partners With CURE Media Group

The IWMF is partnering with CURE (Cancer Updates, Research, and Education) Media Group, the leading US digital and print media company focused on cancer patients, to provide access to up-to-date information for WMers. CURE Media Group provides a free magazine, along...

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Video Interview: Ibrutinib Therapy in WM

n the video, Jennifer Brown, MD, PhD, of Dana-Farber Cancer Institute and Richard Furman, MD, noted WM researcher/clinician from Weill Cornell Medical College, discuss the recent approval of ibrutinib therapy for WM patients, along with their perspective on the impact...

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U.S. NCCN Releases New Treatment Guidelines for WM

Each year, the US National Comprehensive Cancer Network (NCCN) publishes updated treatment guidelines for various forms of cancer, including Waldenstrom’s macroglobulinemia (WM). On September 16, 2015, the NCCN updated its guidelines for WM. The significant changes...

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Financial Assistance for WM Patients

The IWMF is aware that the potential cost of novel oral medications such as IMBRUVICA® (ibrutinib) is a recent and growing concern to the WM community. The Johnson & Johnson Patient Assistance Foundation provides assistance to uninsured US patients who lack the...

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Connect Education Workshop on WM

On Wednesday, September 2nd, the IWMF partnered with the U.S.-based cancer support services organization, CancerCare, in a Connect Education Workshop on WM. Dr. Stephen Ansell of the Mayo Clinic and Dr. Steven Treon of Dana-Farber Cancer Institute gave a well-received...

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CancerCare/IWMF Present a Workshop on WM

WMF is partnering with the U.S.-based cancer support services organization, CancerCare, in a Connect Education Workshop on WM. On Wednesday, September 2nd, from 1:30 – 2:30PM EST, Dr. Stephen Ansell of the Mayo Clinic and Dr. Steven Treon of Dana-Farber Cancer...

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IWMF Enhances LIFELINE

There are currently 38 topics on the IWMF LIFELINE. While some of the topics have to do with various treatments, others deal with issues of living with WM. We have recently added ten new LIFELINE volunteers on a number of topics to provide easier access for those who...

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LLS Co-Pay Assistance Program for WM Patients

Effective May 11, the Leukemia & Lymphoma Society (LLS) announced a new Co-Pay Assistance Program for WM patients to offer financial help toward their treatment-related co-payments, premiums for private health insurance, and premiums and co-pay obligations for...

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2015 IWMF Educational Forum

2020 IWMF Virtual Educational Forum  THANK YOU to all who attended the 2020 IWMF Virtual Educational Forum. We had over 1,300 registrants from over 30 countries! The Virtual Educational Forum is now available on-demand. If you missed a part of the program or would...

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New Financial Assistance Available in the U.S.

PAN ASSISTANCE FOR WM PATIENTS WM patients may be eligible to receive financial assistance from the Patient Access Network (PAN) Foundation to help with high prescription co-pays and deductibles. The PAN Foundation is a national 501 (c)(3) charitable not-for-profit...

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IWMF Affiliate/Support Group Established in Spain

The IWMF’s newest International Affiliate, WM-España, is based in Navarra, Spain under the leadership of Miguel Angel Berrueta. We hope for its success in reaching out and welcoming those in Spain touched by Waldenstrom’s macroglobulinemia (WM). Anyone interested in...

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IWMF Embraces Social Media Tools

To provide the latest news on advances in WM research and treatments, and up-to-the minute information on our services to members, the IWMF will use both Facebook and Twitter. “Like” us “Follow”...

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“Waldenstrom’s and MGUS in Families: Your Questions and Answers.” Dr. Mary Lou McMaster of NIH discusses WM biology and treatments and focuses on the topic of familial WM in her presentation to the Northern Virginia IWMF Support Group in October...

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