International Waldenstrom’s Macroglobulinemia Foundation



The Lymphoma Coalition is a global network of non-profit lymphoma patient organizations, including the IWMF, with a vision to free the world of lymphoma.  Every two years, the Lymphoma Coalition conducts a global survey of lymphoma patients. This year’s survey seeks to gather information regarding barriers to treatment and quality of life, which can then be used for comparative analysis based on type of lymphoma.

The 2018 Survey is now available for us to complete. Please participate – it will take only a few minutes of your time. (Note: IWMF members participated in 2016, 2014, and 2012.)

Thus far, as of 27 February, 2018, a total of 3,666 responses have been received, 373 of which were from WM patients. That’s pretty impressive, given that LPL/WM accounts for only 1% or so of hematologic malignancies, and is in line with the 10% response rate we hit in 2016! Let’s see if we can do even better this time, and show how strong and engaged a community we truly are. And in so doing, we can improve our chances to ensure that the needs specific to the WM community are met. NOTE: the survey deadline is March 7 – so please act now!

Here are some details:

The 2018 Survey is available in 19 languages, and can be completed in 10-15 minutes.

You can find additional information about the 2018 survey on the Lymphoma Coalition website(link is external), or you can go directly to the survey by using the following link(link is external).

The results from prior surveys can be found on their website (select “Global Information”, and then “Global Patient Survey” to view reports from prior years). For those interested, results from the 2016 survey can be found here(link is external).


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