International Waldenstrom’s Macroglobulinemia Foundation



The Lymphoma Coalition is a global network of non-profit lymphoma patient organizations, including the IWMF, with a vision to free the world of lymphoma. Every two years, the Lymphoma Coalition conducts a global survey of lymphoma patients. This year’s survey seeks to gather information regarding barriers to treatment and quality of life that can then be used for comparative analysis based on type of lymphoma.

The 2018 Survey is now available for us to complete. Please participate – it will take only a few minutes of your time. (Note: IWMF members participated in 2016, 2014, and 2012.)

Here are some details:

The 2018 Survey is available in 19 languages, and can be completed in 10-15 minutes.

You can find additional information about the survey on the Lymphoma Coalition website(link is external), or you can go directly to the survey by using this link(link is external).

The results from prior surveys can be found on their website (select “Global Information”, and then “Global Patient Survey” to view reports from prior years). Additionally, 2016 details can be found here(link is external).

In 2016, WM’ers made up 10% of the 4,000 respondents from around the world. Let’s see if we can do better than that this time around, and make sure our voices are heard!


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